Showing posts with label steroid. Show all posts
Showing posts with label steroid. Show all posts

Tuesday, July 7, 2009

Sad but true...

My copy of The Lupus Book arrived today. I'm already flipping through & starting to read it. I'll make an update of the things worth sharing, but already it seems like something everyone with Lupus should have!

Also, today I don't have the energy to take a shower. Seriously. I feel weird & unfocused & dizzy & weak. Did I mention they are tapering me off my predisone? I thought I hated steroids, but coming off them SUCKS even worse & I'm thinking I felt better BEFORE. Uggh. I'm ready to have a doctor who knows about Lupus. Specializes in it. Eats, sleeps & breathes it & can make me feel better & make my life easier & who doesn't jerk me around.

I have an appiontment with a new rheumatologist in Atlanta at the end of August that I think may finally be this doctor. But man, waiting months @ a time to get in with a doctor is total crap. Don't you agree? It made me SO mad when I first started going through this all. But I've found since then that the good doctors are worth waiting for. Usually.

I have already heard this doctor speak before & she was fabulous & I learned so much. So I called & made an appointment as a new patient the very next office day. Hopefully The Lupus Book can get me through until I see her & help me know what to talk to her about & what the important things to mention are.

Well, I'm going to get out the apartment for a bit. I'm feeling a bit of cabin fever. So yes, I will leave the house unshowered. It's either shower or get out of the house. My spoons are running low today & I choose to use them to go visit a friend & her daughter :)