Tuesday, July 7, 2009

Sad but true...

My copy of The Lupus Book arrived today. I'm already flipping through & starting to read it. I'll make an update of the things worth sharing, but already it seems like something everyone with Lupus should have!

Also, today I don't have the energy to take a shower. Seriously. I feel weird & unfocused & dizzy & weak. Did I mention they are tapering me off my predisone? I thought I hated steroids, but coming off them SUCKS even worse & I'm thinking I felt better BEFORE. Uggh. I'm ready to have a doctor who knows about Lupus. Specializes in it. Eats, sleeps & breathes it & can make me feel better & make my life easier & who doesn't jerk me around.

I have an appiontment with a new rheumatologist in Atlanta at the end of August that I think may finally be this doctor. But man, waiting months @ a time to get in with a doctor is total crap. Don't you agree? It made me SO mad when I first started going through this all. But I've found since then that the good doctors are worth waiting for. Usually.

I have already heard this doctor speak before & she was fabulous & I learned so much. So I called & made an appointment as a new patient the very next office day. Hopefully The Lupus Book can get me through until I see her & help me know what to talk to her about & what the important things to mention are.

Well, I'm going to get out the apartment for a bit. I'm feeling a bit of cabin fever. So yes, I will leave the house unshowered. It's either shower or get out of the house. My spoons are running low today & I choose to use them to go visit a friend & her daughter :)


  1. Hi Erin, don't give up...i'm glad I stumbled upon your blog, stay positive

  2. Thanks hun :) I'm trying! Some days are easier than others, but I'm still trying to be positive :)